E-wareness: Bone Marrow Donation

RotaryE-warenessLogo

 

 

 

BONE MARROW DONATION

(November 2014)

 

Campaign Coordinator: Roy Glickman

 

ROY’S MESSAGE:

Would you donate some stem cells to save a life? A stranger did that for me through a worldwide data base. I hope to get more donors enrolled and more lives saved.

In October 2011 I received some very unsettling news from my doctor. Blood tests and a bone marrow biopsy had confirmed that I had a rare bone marrow disease that was rapidly progressing and for which there was no treatment. The only hope was a stem cell transplant, which would replace my diseased marrow with new healthy bone marrow.

But a transplant was only possible if a genetically matched donor could be found. I had no relative who could be a donor, so my doctor turned to Be the Match, a nonprofit organization which maintains a registry of over 10,000,000 potential donors. Fortunately, within weeks a perfect match was found for me and I was scheduled for the transplant. It saved my life.

I owe my new healthy bone marrow to the donor halfway around the world who provided his stem cells to me and to Be the Match which located him. I was lucky. Many patients never find a donor who is a suitable match for them. I hope that by publicizing how easy it is to register as a donor, how simple it is to donate cells if a donor is determined to be a match for a patient, and how lives are saved by this procedure, more donors will join the registry and more patients will have successful transplants like I had.

Could you be a donor and save a life? Let us show you how easy it is.

 

LINKS TO IMPORTANT ONLINE INFORMATION:

If you read only one piece of the information we share, please read:

or

Other valuable links:

What is a bone marrow or stem cell transplant–

http://www.seattlecca.org/diseases/bmt-facts-whatisbmt.cfm

Where donors come from–

http://bethematch.org/About-Us/How-we-help-patients/Be-The-Match-Registry/

How to register to be a donor–

http://bethematch.org/Support-the-Cause/Donate-bone-marrow/Join-the-marrow-registry/Join-now

Hear from donors about their experience–

http://bethematch.org/Support-the-Cause/Donate-bone-marrow/Donation-process/Donor-experiences/

Hear from patients about the life saving impact of marrow and stem cell donations–

http://bethematch.org/Stories/Patient-stories/

The importance of expanding the database with donors of varying races and ethnicities–

http://breakthroughs.cityofhope.org/diversity-marrow-registry

http://www.aadp.org/about/

http://www.mavinfoundation.org/projects/matchmaker.html

And you can view our 5 March 2012 Program, an interview with Janet Higgins of BE THE MATCH describing the process of becoming a donor.

 

GUEST SPEAKER:

Dr. Stephen Forman, the Francis and Kathleen McNamara Distinguished Chair in Hematology and Hematopoietic Cell Transplantation at City of Hope in Duarte, California, is one of the foremost experts in the field of bone marrow transplantation in the world.  In this comprehensive but fast-paced conversation, Dr. Forman explained the reasons for bone marrow transplantation, the process for donor and patient, and the need to expand the worldwide database of potential matches.

Read more about him here on his City of Hope page.

If the embedded video does not work, please click here to view it on YouTube.

 

FOR THE FUTURE:

Donating stem cells is a simple procedure for the donor but lifesaving to the recipient, and Be the Match is the essential link for patients to find genetically matched donors.   But even with the extensive database maintained by Be the Match, half of all people who need a stem cell transplant cannot find a suitable donor.  We hope our awareness campaign will encourage more people to join the database and increase the chances that a patient will find a matched donor.   It is truly a gift of life.

VISIT BE THE MATCH AND LEARN HOW TO JOIN THE DATABASE.  CLICK HERE.

 

THE ROTARY E-CLUB OF THE GREATER SAN FERNANDO VALLEY asks you take a look at more of our website, especially the PROJECTS tab, and invites local visitors to contact us for more information about joining our fun, active, flexible team.

The opinions expressed by guest speakers are those of the speaker(s) and not necessarily of the Rotary E-Club of The Greater San Fernando Valley or its members. No endorsement is implied. Programs are presented for informational purposes only.

(end)

Leave a reply

You must be logged in to post a comment.